[ARTICLE] Being a woman with acquired brain injury: challenges and implications for practice

Abstract

Objectives: To explore the experiences of women with non-stroke related ABI to gain greater insight into their general and sex- and gender-specific health and well-being concerns, and to identify areas for future research.

Design: A qualitative pilot study using interpretive description methodology and a sex-and gender-based analysis of data collected through focus groups.

Setting: Community.

Participants: A sample of survivors, and formal and informal caregivers of women with ABI (n=16) living in Canada.

Interventions: Not applicable.

Main Outcome Measures: Not applicable.

Results: Participants identified significant barriers to achieving optimal health and well-being for women survivors of ABI, including a lack of knowledgeable professionals. We identify three interrelated themes: (1) experiences shaped by gender norms and roles; (2) experiences influenced by physiological phenomena, including perceived hormone imbalances; and (3) experiences surrounding interpersonal relationships and sexuality.

Conclusion: Post-ABI care should include education about the influences of sex and gender on health and well-being. Acknowledging the impact of gendered roles, and the broader socio-political context of gender and disability, is important to develop appropriate services and supports following ABI. Incorporating effective communication strategies between client and health care professional can also be a potent rehabilitation strategy.

via Being a woman with acquired brain injury: challenges and implications for practice – Archives of Physical Medicine and Rehabilitation.

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  1. #1 by brokenbrilliant on February 10, 2015 - 02:58

    Reblogged this on Broken Brain – Brilliant Mind and commented:
    Brain injury is bad enough by itself, but when you factor in gender and social roles, it becomes even more problematic. I don’t have access to the full article (it costs money), but I think this is worth thinking about.

    Like

  2. #2 by Tanya on February 10, 2015 - 03:42

    We have already had the experience of being told that the post-concussive symptoms are not real…and due to hormonal changes. So untrue and we have data to support it in this particular case because one of the concerns brought to our attention was that growth hormone could be decreased potentially due to the injury; we had the hormones checked right away–thankfully all normal. We have stayed informed about clinical research trials for TBI–but haven’t qualified for any yet–very willing to be a part of a controlled trial or epidemiological study to provide more science for guiding TBI policy development and health care management.

    Like

  3. #3 by kickspb on February 10, 2015 - 18:27

    I spent my master’s thesis researching this topic (and I had full access to articles like this one). I share the results from my study on my blog https://kickspb.wordpress.com/, but let me know if you’d like any more resources for articles. I have a TON!

    Like

  1. [ARTICLE] Being a woman with acquired brain injury: challenges and implications for practice - Head Injury Talk News and Recovery | Head Injury Talk News and Recovery

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