Posts Tagged patients

[Abstract] Acceptance of Tele-Rehabilitation by Stroke Patients: Perceived Barriers and Facilitators

Abstract

Objective

To explore the perceived barriers and facilitators of tele-rehabilitation (TR) by stroke patients, caregivers and rehabilitation therapists in an Asian setting.

Design

Qualitative study involving semi-structured in-depth interviews and focus group discussions.

Setting

General community.

Participants

Participants (N=37) including stroke patients, their caregivers, and tele-therapists selected by purposive sampling.

Interventions

Singapore Tele-technology Aided Rehabilitation in Stroke trial.

Main Outcome Measures

Perceived barriers and facilitators for TR uptake, as reported by patients, their caregivers, and tele-therapists.

Results

Thematic analysis was used to inductively identify the following themes: facilitators identified by patients were affordability and accessibility; by tele-therapists, was filling a service gap and common to both was unexpected benefits such as detection of uncontrolled hypertension. Barriers identified by patients were equipment setup–related difficulties and limited scope of exercises; barriers identified by tele-therapists were patient assessments, interface problems and limited scope of exercises; and common to both were connectivity barriers. Patient characteristics like age, stroke severity, caregiver support, and cultural influence modified patient perceptions and choice of rehabilitation.

Conclusions

Patient attributes and context are significant determinants in adoption and compliance of stroke patients to technology driven interventions like TR. Policy recommendations from our work are inclusion of introductory videos in TR programs, provision of technical support to older patients, longer FaceTime sessions as re-enforcement for severely disabled stroke patients, and training of tele-therapists in assessment methods suitable for virtual platforms.

via Acceptance of Tele-Rehabilitation by Stroke Patients: Perceived Barriers and Facilitators – Archives of Physical Medicine and Rehabilitation

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[ARTICLE] Informal Care Provision by the Family to Hospitalized Patients in a Rehabilitation Clinic of Western Greece – Full Text PDF

Abstract

Introduction: Recognizing the burden imposed on families and society by long-term care of chronically ill patients, there is a need to empower caregivers and take measures for slowing the deterioration of the quality of life for the caregiver and the patient.

Aim: The main aim of the present study was to investigate the caregivers’ views regarding the services provided by them for their hospitalized relatives and their opinions about the their health education needs, informational needs and needs for support in a rehabilitation clinic of Western Greece.

Methodology: The sample consisted of 75 caregivers of hospitalized patients who provided unpaid services and they wanted after informed consent to participate in the study. Data were collected in 2012 within a period of 6 months. A self-reported questionnaire was completed and the statistical analysis was performed by the use of SPSS.

Results: This study shows the need for caregivers’ health education on technical care and general knowledge about the disease, on how to handle an emergency situation at home. Obvious were also the need for information about the benefits to disabled people from public and non- profit organizations, but also the need for learning how to support emotionally patient. Information about the transition from hospital to home, emerged as necessary through this study. Caregivers felt that it is the obligation of the hospital to provide training and health education and indicated nurses as appropriate health professionals for the role. Also the need for emotional support for caregivers by health professionals was highlited and caregivers believe that adequate staffing of rehabilitation units will allow health professionals to provide time for emotional support of caregivers, but also time for casual conversation on general subjects, in a civilized environment, aiming to empower caregivers for better care of patients.

Conclusion: The health education needs of the caregiver must be sufficient, after careful assessment of training needs, information and emotional support and by strengthening the concept of self-care of the caregiver. To address these needs, specific training plan is required, preparing the caregiver in his new role and adjustment to the new lifestyle.

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